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I found this article quite informative. I do not suffer with celiac but a cousin of mine does. He is only 9 but he was hospitalized and it took weeks to find out what was wrong.(curse of living in a small town) Our family has gone glutin free so he can be safe at any family member home. I can not tell you how much better we all feel! Better sleep @ night and more energy. Also, my whole family has lost so much weight it is insane! So far the highest weightloss is my aunts, losing 62 lbs and 43 lbs since last november. You may think it is a real problem going gluten free but with family support and experiments it is so much easier!

Going gluten free is a great deal more complex than the above article would have you believe. Contact the Celiac Sprue Association to get a real, definitive list of what you need to look for and what can and cannot be included in the diet. I have found this resource to be invaluable. I am a dietitian AND gluten intolerant and for years was given bad advice by the medical profession. You need to talk to people who know what they are talking about.

This has been an interesting read. Along with helpful hints from many who are afflicted with Celiac or its symptoms, we were entertained by several who had obvious brain damage, perhaps from unkowingly eating too much gluten. I also suffer from some of the symtoms I read about in your comments. I have never been diagnosed with Celiac, but I suspect that that may not mean much, given what I've been reading here. In my professional life, I learned that the only reliable proof of a potential solution to an undesirable condition, is A-B-A proof. In this context it means; if you are feeling poorly and you make a change in your diet and you feel better, then you reintroduce what you eliminated and you feel poorly again, and then you eliminate it again and you feel better again, you have found a credible root cause. It doesn't necessarily mean that it's the only root cause, but it's definitely a significant contributor.

I am a dietitian and have worked with a great number of individuals with celiac disease.If someone suspects thay may be gluten sensitive due to either celiac disease or allergies it is essential that they seek medical advice. Self diagnosis and treatment can be dangerous!

Thank you all for the information you've shared. I'm wondering if anybody else has my problem. A couple of years ago I started having stomach problems, so I got tested (negative)and quit eating gluten. What I've found, though, I'm fine with most gluten products except regular flour. I can even eat unbleached organic flour without experiencing a single symptom.
I'm thinking that maybe wheat changed recently---is the bleaching process different? Are we getting genetically modified wheat? I have no idea, but would appreciate hearing others' thoughts.

Les Hall sounds like a miserable human being who doesn't have a life. To critisize someone for their health problems just shows how ignorant and insensitive he is. He should definitely be ignored!

As the summer camp food service manager at Camp Kanata, in Wake Forest North Carolina, I have learned so much about the disease. We have one week during the summer when we get a group of approx. 30 campers and helpers to prepare the same foods we offer to all the campers. They learn a lot and meet kids with the same problem. They learn what they can eat and how to spot possible foods that they should stay away from. I enjoy working with the group each year.

ch other

Check out CeliacChicks.com for info on where to eat gluten-free, especially in NYC.
Charlotte- You can eat a lot of other "grains" like millet,quinoa,teff,sorghum,mesquite and amaranth. My favorite is sorghum. In my opinion, it is the best wheat flour substitute.

Thank you Dr. Oz for helping out with celiac disease/gluten-intolerance awareness!:)

also, there is a website called
samisbakery.com

they offer a significant amount of millet and flax products that range from bread, to crispy triangle things, to pizza dough! to me they taste closest to "normal" food, and it was nice to have pizza and cookies again that i did not have to bake from scratch. they are a little expensive, as all of the alternative products seem to be, but they freeze well and are worth it!

though going gluten free can be challenging, and sometimes you can feel as if you cannot eat a thing, its worth it. i love cake and cupcakes and those are the things that i miss the most.

about once a month or so i attempt to re introduce wheat and gluten into my diet and am reminded just how much my body hates it. so, even though i miss standard white four, tapioca flour and other flours make me happy!

I feel that whenever I eat anything with glutin, I crave that kind of food all day. Is this possible?

Is there any benefit in avoiding or cutting down on gluten, even if you are not (knowingly) allergic?

I don't know if I have a gluten allergy or just a starch allergy, because in addition to breads and grains I also sometimes react to potatoes--this is a big part of the reason I'm switching to a low-carb diet.

Les Hall is what's known as a "troll", someone who posts contrary things to specific forums just to get people to react to him. The best thing we can do is ignore him. Anybody who's ever lived with any kind of food allergy can testify that it's not "in our head" or something we're imagining, and people like him merely demonstrate their ignorance of the subject.

You have to actually "have" celiac sprue or dermatitis herpetiformis to fully understand the pain and suffering one experiences by ingesting gluten. I was recently diagnosed with both after years of intestinal disorders and skin eruptions. My life has completely turned around after going gluten free for several weeks. Two of my five grandchildren have also been diagnosed with celic sprue by biopsy and they now are living a "normal" life with diet adjustment. Ignorance is the main reason that people don't understand nor accept the medically proven cause of the disease but this is slowly being overcome by educating the public with the facts. I spent 40 years in the medical/health care profession and change comes slowly but one should never give up trying to make people healthier.

Any good recipes that are sugar free and gluten free?

A number of people have said that they don't have celiac disease (sounds like a number of my alcoholic friends) but they are on the celiac diet because it makes them feel better. Let me recommend a new book "The Autoimmune Epidemic" by Donna Jackson Nakazawa. She isn't a doctor but a journalist who has been looking at "bodies gone haywire in a world out of balance". She lists over 100 autoimmune illnesses, including celiac, Crohns. diabetes - type 1, discoid lupus, MS.juvenile arthritis, psoriasis and IBS, which are all recognized as failures of the autoimmune system. And several other which are suspected of being autoimmune induced or aggravated. Her contention is that if you go on the celiac diet (gluten free et al) and you feel better then you have celiac disease. I too have run into the same lack of knowledge (and I live within half an hour of Yale-New Haven Hospital!) and interest in celiac and any of the related illnesses, mostly because there isn't any money to be had from drugging it. It's a pure diet problem. The last gastro man I went to offered my a prescription for a digestive blocker that cost over $100/month and when I refused and said I would stick with Zantac, he lost interest in me and told me to "have a nice life".

I have an appointment next week with Yales best "celiac" man. We'll see what he has to say.

Healthy all my life; Age 35 the beginning of Acid Reflux; 20 years on an acid blocker, yes it kept me symptom free, but than began to learn about side effects of medicine; Discovered gluten free approach; One day later no symptoms with no medicaion; Gluten free works!

Les Hall, What is your problem? Why are you ranting? And why here of all places? There are people with allergies/sensitivities to all kinds of things. What on earth does that have to do with offshore drilling or hugging trees? People are posting and reading comments here because they care about their health and that of others and want a forum in which to share their knowledge and to learn from others. You are adding an irrelevant and negative element here, and you are not wanted. Find another place for your sick, narrow-minded, and outdated opinions. YOU are the complainer and the bored trouble maker.

This is in response to Les Hall's comment of Aug 16th. What, Sir, if anything does this forum regarding physical ailments caused by gluten or wheat have to do with Tree Huggers Oil or any other bashing of political issues? You are the one with no life. You are an Online Lurking Basher. You have just revealed yourself in the post, by your own words. This is not the first comment today from you is it? I pity the other threads you have ruined with your ignorant ranting. Stick to the idiot threads and oh, get a life.

Tree Huggers; your efforts to ruin the baking industry are just plain silly. It is all in your heads not the rest of your bodies. It is possible that there are a few of you out there allergic to bread but a very few if any.I have found that complainers are bored trouble makers and make things up to try to prove their lies. Like off shore drilling was bad for the environment. We now are paying dearly for your lies and now no one believes you any more.
It is time to start a new protest group that protests the protesters. We could call it Citizens Against The Protesters. Or Real People Against The Evil Ones.I have been sick many times in my life and it was all caused by the Tree Hugger types, you know the bored trouble makers that do not have a life.

Allthe comments are beneficial,educational,interesting,I would add that keeping a record of everything you eat in a week or month,make comments on how you feel 2 hours after each meal would be introspective in solving problems with indigestion,brain fog or physical symptoms as well. I think we need to return to a simpler life in a more narrow range of foods in season in our own counties.We have become so global in our taste,that it is inviting problems to our digestive systems. Maybe there is something to the blood type diets,I'll have to reread that diet. THanks one and all.

I will go this a step further and say, I dare you to cut out all grains for a week even and NOT come back and say that you feel 100% better. The fact is children w/celiac disease used to be CURED by going on a totally grain free diet and then someone decided it was only gluten that was the problem. They can CONTROL the celiac disease to a greater or lesser degree by cutting out gluten, but it is not nearly as dramatic and miraculous as cutting out all grains. BTW, adult celiac sufferers cannot expect to be cured by going grain free, but they can eliminate the symptoms of the disease. I have been grain free, eating pasture raised meats (NOT grain fed unless I go to a restaurant and can't avoid it), fresh fruits and vegetables. It is a radical diet, and most people will scoff and never even try it. But my inflamed joints (mainly my shoulder) are 95% better, my irritable bowel is 100% better, I have energy, FEEL GREAT (isn't that what we really want?) and everything tastes so good, that I'm not even missing what I'm not having. Just a few days into it, I ate some white rice, not much, thinking I could just do the gluten-free thing, and my shoulder hurt within an hour of eating it! That is what really convinced me. I can use almond flour and tapioca flour to bake my own substitutes when I need to, but I haven't craved anything I'm missing, yet. Check out the Paleo Diet if you want to actually feel better. We all make choices and it is fine to choose the same old, same old, but there is no point in knocking what is WORKING for someone else, just because you don't choose to do it.

I was born with CD. But then they thought I outgrew it when I got older.
(you don't) so when I got older finally
learned again about eating GF. It's
a big change- but not the worst thing
to happen in life- you adjust. One of my
favorite sites is the Crockpot Lady-all
her recipes are GF.

Sorry to the person I upset with my negativity. I didn't mean to offend you. I am lucky to have been blessed with good health all my life and I just wonder how our grandparents lived as long as they did with the toxic diet in America. I think anyone should know not to introduce impurities into their system and that the consequences of doing so can cause many health problems. I just wonder why my friend who never eats anything that isn't organic, nor does her family, always has one dietary illness after the other including funguses from organic foods. Her children also got the fungus so it was not just one family member. This has happened more than once. Even she agrees that maybe things are getting out of hand with all the diet issues. I am not referring to persons with cancer or other tragic illnesses. Just in general, people are terrified to eat the same things that have been eaten by millions of people daily and who have lived quite well and without major health problems. Good health to you.

What's with the angry people? Why would you call people with mysterious health problems idiots? Do I have to have cancer for you to be happy - this is a socially acceptable disease? Do you really think millions of people are just making up symptoms for fun? If you go to Asia, they're not as fat, not as sick as we are....their diet is quite different, more gluten-free than ours (although they're starting to have our problems as they start eating western foods). Don't bother others with your closed-mindedness and negativity. I assume you've been in good health and can't identify with any of this, so you should consider yourself lucky. We're all just trying to do the best we can considering the toxic diet we have in America. Americans are so used to eating like crap that we think it's depressing to 'have to' eat vegetables and other natural foods on a regular basis. It's definitely a challenge, but sad, really, when you think about it. We've alienated ourselves from the natural world. I can't believe there are still people out there using the term "tree-hugger" in that negative way -- it's just common sense to treat your environment well...it's where you live for god's sake! I know I shouldn't respond to negativity, but those couple of comments irked me.

i have Celiac and the diet is the reason that i am alive; but in your report you have omitted the gluten containing grain "malt" and this an important one as it is in so many foods as added flavoring, e.g. chocolates, cornflakes and other cereals, dressings, drinks, ice-creams, candies, baked goods....
peace
mitzi

I am starting to think people should stop eating, period. Now bread causes gas. If I cut out everything that is causing me trouble according to studies I will soon become invisible from the weight loss. I hope someone soon finds a good reason to eat something other than green leaves. I am not yet a farm animal! How annoying. Eat a darn twinkie and sandwich and smile you idiots.

I think most of you are full of it. It is mostly in your head not your stomach.You are going to the wrong kind of doctor. Most of you would complain if you were in Heaven.Get a life it is not gluten that is bothering most of you. That one about it causing Asthma takes the cake, no pun intended. I wish you all the best of health but grow up. Sounds like there are a lot of tree huggers out there. I bet most of you are against off shore drilling and wind mills for killing birds.

Michelle Moon, I have issues with severe itching(on my shins mostly and no rash) and food sensitivity which almost made me crazy. An allergist said I'm not actually allergic to anything just highly sensitive to everything! How was I to deal with that? I have been working with a naturopath for over a year now and my sensitivities are quickly decreasing. Itching is sometimes a sign the liver or kidneys needing to detox from the years of being overloaded. The way to deal with it is different for everyone depending on what it is that your body is dealing with and I do recommend it be done with a doctor's supervision. Bad eating habits will continue the cycle so detoxifying the body should not be looked at as an event but rather the beginning of a new regime and way of looking at how we fuel our bodies. We also discovered that I have leaky gut which is something worth looking into if you have malabsorption issues or can't seem to find the reason for digestive disorders. I started taking a suppliment in the way of a powder mix and within one week, I found a change in my consitution. I am still learning and unravelling the layers but the itch is gone, fatigue quickly being replaced by new found energy and mental clarity is being restored as well. Now my focus is shedding those twenty pounds that came with the stress and poor eating habits. I travel on a global scale so my challenge is ongoing.

I am one of the "lucky" ones with celiac disease. I am 62 and did not know that I had it until I was 59, even though I have had symptoms from 6 months of age. About 25years ago, I developed DH which the CDC now says is the only diagnosis need for proof of celiac disease.
I went GF in Oct 2005. Since then, I have gained 40# which I needed. My cholesterol is close to 200 (it was <100) I have re-established the fat padding on my feet and hips, so I can walk, stand and sit more comfortably. My stomach/digestion issues are 90% gone. (I had a Billroth II procedure in 1983 because of a atrophied duodenum and ulcers disease) sinus infections are no more, memory is improved. Many other areas improved as well.

The difficulty of the GF diet is small compared to the health benefits if you are gluten intolerant.

I would like to thank all those lovely readers who have taken the trouble to answer my posting.

I would also like to encourage all those who are about to embark on a gluten free diet.

Thank you all and God Bless America

something to some of this, I feel that I just might have some of those system, for instant, I do have stomach problems, and have had to go to the hospital a few times for some type of relief. I will have to investigate this glutten stuff , I know it real,

I suffer from Irritable Bowel and cut out gluten and wheat about 2 years ago. I am pretty sure it is the wheat NOT the gluten. I can eat moderate amounts of Spelt bread and Rye bread. I CANNOT tolerate MSG at all - within 20 mins of eating I have diarrhoea!! I really have to watch all the ingredients in foods, as MSG is often used in wheat and gluten free products.

Within 6 weeks of going gluten and dairy free, my blood pressure dropped to 116/68 without meds(It had been 135/90 on meds) and cholesterol dropped 47 points. I have more energy and generally feel much better.

everyone had something good to put in here. Allergy's are bad. Rashes. Depression. Intestinal Problems. Fatigue was my big thing. Any thing you can think of, can be there. It is different with every person. Some people don't have any thing they can point out.

My problem began like an atomic bomb explosion. Then, for 6 years med drs. and I tried to figure out what happened, and keeps on happening. Thankfully, I found alternative care professionals that suggested 'gluten' may be my problem and they tested for allergens. Yes. Most probably. We do not believe I have celiac disease, but an intolerance to gluten. Remedy: I don't eat grain product often. Rotation of 4 to 6 days is best. A flare up means don't eat the gluten. That means pies, pizza, rolls, wonderful breads at so many resturants and many other things. It is worth it! Comell M.

If you are severely allergic to gluten, you may experience a poison-ivy-like rash all over, especially in the hair,and swelling of the mouth causing you to bite your cheeks or lips. This can be treated, although 99% of dermatologists have no clue. I went to many before finding one who 'got it'. For severe cases only: Ask your derma-MD to look into Dapsone (100 mg, every other day) and Prednisone (5mg, every other day) to protect you from the incidental intake of gluten at restaurants etc. It's cheap, it works, and like I said, your Derma-MD never heard of it.

"I want to throw some dissent into to this conversation."

Lori might have a point, but I did not notice her saying she tried to go wheat ot gluten free. It very well could be stressers that trigger the reaction we have to any number of foods dairy peanuts gluten etc... I had a test done by a practioner who does kinesiology I had reactions of many foods, wheat, peanuts, potatos. I don't know if it amtters which came first the chicken or the egg. the allergy or the stress, but eliminating both sure can't hurt.

I found that it is not only the gluten that bothers me but any thing that grows like a grass plant. It took along time to figure out that flax and canola oil was a problem as well. I hope this helps others discover what is causing the bellyache and brain fog.

Thank you, this is so helpful. I have long suspected that I was sensitive to gluten. But having some of the symptoms laid out for me makes me more convinced.

I had a severe case of cystic acne growing up. We tried everything to cure it. After every idea was exhausted I took it upon myself to do a bit of digging. After one crazy diet after another I finally found that gluten was to blame. I ask, that if you know anyone with severe acne to suggest an allergy test and talk to a doctor about possible gluten problems that may be the cause of it.

Brain fog was my main gluten-induced symptom - for a long time I thought I was getting Altzheimer's. About two weeks after going gluten-free I found the fog lifting; it came right back when I reintroduced it. I've been gluten free for about a year now, and I still keep noticing small improvements. It's amazing to be able to rely on my memory again, and to be able to speak a complete sentence without stopping to think of a word... Well worth the drawbacks of being gluten-free.

Thanks for doing your part to raise awareness about celiac's disease by talking about a gluten free diet. As others have indicated, it is easier said than done because gluten is in so many unsuspecting places. I would echo the importance of not going gluten free and then getting tested because it will throw off the results. On the diet side, more and more stores are stocking gluten free items. Online stores can be found with a simple search and Amazon.com carries supplies in bulk quantities once you have found something that you like and that works. For the pasta lovers, try quinoa spaghetti. It is probably closest in taste to what you are used to and it stays with you longer. Nature's Path does make some corn flakes that are gluten free (you have to watch out for the barley in others). Many communities have celiac's groups if you want to get on their mailing list or meet with their groups to raise your knowledge base. For those who want to eat out, ask for a gluten free menu. More restaurants are prepared to provide one.

Kelloggs Corn Flakes contain malt flavoring, which is not gluten-free. Please make this a note in your article! Rice Krispies aren't gluten-free either. Rice Chex are now gluten-free, but please check your box to make sure it is the new version.

I have been cheating after going mainly wheat free and feeling it. When i first went wheat free. Even my family noticed a happier more positive me, as well as the gut pain, and depression lifting. I love many of the foods that wheat gives, but I love my health more and know i need to get back on the wagon. For the sake of my health, sanity and family.

An excellent source for gluten free products is Liv N Well. They have a website and a shop in Vancouver BC near the airport. They stated the business because their daughter needed such products.

Try Jules Shepards book called Nearly Normal Cooking for Gluten Free Eating.I dont buy many cookbooks but after reading her article in the Washington Post and making her pizza recipe I was sold. I also use her flour blend to make cookies and they tast regular.PS.Since going gluten free I have gained 18 pounds!

On Aug 15, 2008, at 11:12 AM, Michelle wrote:
I have been following The Live Right 4 Your Blood Type Diet For Seven Years and at first it was great I lost 70 lbs., but I'm still having trouble and my doctor doesn't seem to know what's causing the itching and all other things that you mentioned on your site, the only time i eat the wrong thing is when were out were they don't have what i should have so unless we stay in all of the time , it's hard to be social with others.
As far as your food list goes I can't have but a few things I'm more limited than what you all have on your site............

Sincerley, yours
Michelle